Lyme Disease

As of 20th October, 2010, Katelyn has handed the reigns of this lyme disease web site over, as she feels she would just like to put this part of her life behind her, now that she has essentially recovered.

Katelyn’s original content wil be kept, and can always be found via entries occuring before the 20th October, 2010.  Katelyn’s information is comforting reading that gives hope  for anyone who knows someone with Lyme disease, or who has come down with Lyme disease at some point in their life.  Katelyn’s info is the down to earth, honest reactions, coping skills etc, that she, as a Lyme disease sufferer, wrote about and experienced first hand.

I, on the other hand,  my interest is largely about preserving a web site that documented the human suffering lyme disease creates and updating it with useful and newer information, and my name is Donald.

So, I thought I’d give everyone an update on where I am with the whole Lyme disease deal. After three years and two separate Lyme disease infections, I feel pretty close to myself again. I have gone from having one pain free day a month to two or three painful days, which makes a huge difference.

Thank you for visiting Www.LymeAdvocate.Com
Author:  Katelyn, of Cecil County, a victim of Lyme Disease

I do still have to really be careful when balancing checkbooks or setting up appointments. Figuring out what time I need to leave to get there and back again is oddly hard. I’m hoping I still improve, since I used to be the geek who got 99.2 in Algebra on her report card and now seem to have trouble with some basic math skills!
The biggest change is that I don’t plan to garden any more. I was a passionate gardener and a garden writer for several years. It is a hard decision, but turning the entire yard into a mown expanse is the best way to keep the ticks and all the wonderful little critters carrying them in the woods. I also will be adding more nematodes to the lawn to help stop new baby ticks from hatching.

I also make sure that my last stray kitty gets flea and tick drops every month to be sure she doesn’t bring any deer ticks up near the house. (I think I’ve mentioned the 19 cats and the kittens that were here when I moved in. They were covered in ticks from playing in the woods. I found homes for everyone but this little girl. She won’t be an indoor only cat, so she has a heated cat house on my porch to keep her warm.)

The important thing is that it took a long time, several sets of blood tests, several sets of antibiotics and bottles of Vitamin D, but I did finally get a lot better. So, if you are feeling like you’ll never get better a few months after you first got Lyme, please don’t give up. Go back to your doctor and ask to be tested for Lyme again because you may have gotten a second case. Ask to be tested for vitamin deficiencies. And keep believing you will get better. One day, when you least expect it, my prayer is that you wake up, get ready for the day and find yourself singing, “I feel good! I knew that I would now…” at the top of your lungs.

So, I have now discovered three different articles in farm journals by people who have free roaming chickens, turkeys, ducks and/or guineas and they all say the same thing. Those little birds love to eat ticks and they have many fewer ticks in their yards than their neighbors do. Hmm. If Avian Flu wasn’t a possible concern, I’d say that Cecil County needs to institute a chicken or guinea hen release program.

If that won’t work, maybe one of the other organic tick control methods researchers are working on will control the population around here. The USDA has an older report on some different methods being researched that makes for interesting reading. I’ve got some nematodes to spread in my yard and have that chore on this week’s to do list.

It seems like everyone says the same thing lately. “You have Lyme Disease? My brother, girl friend, cousin, coworker, and/or neighbor does, too!” I was thinking I was imagining things, but my doctor told me something that made me realize it was unfortunately not my imagination. Lyme Disease in Maryland is on the rise and Cecil County has the second highest rate of ticks infected with Lyme in the nation. That’s right, we’re right behind Lyme, Connecticut. Not a race I want to come in second in. I’d be happy with a distant fiftieth.

So, what do you do? Pay close attention to the CDC guidelines for Lyme prevention and exercise extreme caution when you head out to enjoy the outdoors. I’ve personally put hiking on hold unless I’m vacationing in an area that doesn’t have a high concentration of Lyme infected ticks and am trying to convince myself that walking around and around on asphalt tracks is fun. (Blech!)

That’s right, folks. According to my doctor, it wasn’t a flare up, but an actual new infection because the lab work showed two different results – one for an active infection and one for a previous one. Since I’ve been taking every possible precaution, I’m a bit frustrated right now! The good news is that it was the milder form of Lyme as opposed to the form I had before. The bad news? It’s Lyme Disease.

So, now, although I finished the antibiotics, I feel like I have Mono and will probably feel that way for about six months on top of everything that’s still wrong from the first bout. Ick. Those guys in the country songs that mowed down paradise to put up a parking lot?  They probably had Lyme Disease and then got it again! I’d like to do that to all the nice green stuff around me, too.

Anyone else get two separate bouts with Lyme Disease  back to back or am I just special?

So, back in October, I went in for more tests because my bones were hurting so bad that I could barely walk. I felt like I had aged thirty years in one. My doctor was about out of ideas when she decided to test for Vitamin D. My levels came back ridiculously low. I don’t know if they were depleted from the actual Lyme Disease or just from being outside less in the summer, but I had levels in the teens instead of the forties.
When the test results came back, my doctor prescribed 2 Vitamin D supplements a day. (Not the plus calcium kind.) I didn’t end up pain free, but I am much better. I went from being barely mobile 24/7 to having a few joint pain flareups a week by the end of January. If  you start getting bone pain on top of the joint pain, don’t just think it is in your mind or let your doctor dismiss it as something unimportant. Ask for tests and keep asking until the doctor finds out what is wrong.

 I was planning to write this last week, but I was too sad. Lily, my mom’s little Yorkie, who was only 8 years old, died on Sunday from kidney failure.

My mom always made sure the dogs had a good flea and tick preventative and Lily was usually an indoor dog, but she did run off a few times last summer and there are fields nearby. Still, it wasn’t very frequent and no one thought to test for Lyme’s when she seemed sore because we thought the bigger dogs stepped on her. When she acted lethargic and sick a few weeks ago, my mom took her to the vet, who drew blood and ran tests. She said Lily had kidney failure and one of the things that caused it was Lyme disease. She went back and ran a Lyme’s test and, sure enough, Lily had Lyme disease.

She gave her three days to live and said she didn’t seem in pain, so my mom went home with an IV bag, a broken heart and her little dog. Lily actually lived two more weeks because, despite her tiny size, she was a spunky, feisty creature. We all said goodbye, but we are so sad that she died so young.

Please, please don’t just depend on your expensive flea and tick preventative to keep your dog safe, even if it rarely leaves the house. The bigger dogs were vaccinated against Lyme disease, but no one thought to vaccinate a small dog who spent most of its time indoors.

We love you Lily.

I was watching the first episode of the  third season for Ugly Betty last night because it is supposed to be more like the original season, which I loved. I’m not sure about that, but I’m glad I watched The Manhattan Project because Betty confronted a former school enemy (Kimmey, played by Lyndsay Lohan) to patch up a fight that ended up with her dad being fired and Kimmey listed a bunch of stuff that was going on in her life and said she thought she had Lyme.

I’m always happy to see a mention of Lyme disease in prime time television, even if it is in a slightly silly context, because it raises awareness.
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It never fails. I’m feeling great, so I agree to work a few days and take on an extra freelance project to boot. By the end of the week, the joint pain and nausea are just bugging me so bad. Why don’t I learn I can’t do that stuff like I used to? It just is someone else’s normal work week and it seems like I should be able to, but not happening.

Is this normal for Lyme?

I debated for a long time this year over whether I was going to garden at all. I considered options like getting a huge load of green concrete in and covering the whole yard with it, but in the end, I decided that the pleasure of gardening outweighs the risks. Besides, one of the feral cats probably delivered the tick that infected me to my door.

I could get a relapse of Lyme disease. Or catch West Nile Virus. Or receive a bite from one of the poisonous baby snakes that enjoy the rock wall. I could also get hit by a falling ceiling fan in the house. So, I’m gardening cautiously. Very cautiously. I’m doing my best to alleviate risks with:

• Light colored clothing with long sleeves
• Hat
• Off sprayed on my shoes

And I’m enjoying my time in the garden, even if it is a bit painful because of the joint pain and I can’t do the more strenuous activities I used to handle easily. The bulbs are blooming and the veggie garden (Freshly tilled thanks to my brother.) is partially planted.

I love spring, even it means a legion of infectious deer ticks are being hatched.