Comments for Lyme Link

Comment on Scientists Say Chronic Lyme Disease Is Not Real by admin

admin — Tue, 03 Nov 2009 18:34:41 +0000

Tammy,
I have the same problem with things like the books of the Bible. It is so frustrating. I’m praying God will restore your memory. I’m doing a little better with things like balancing the checkbook, remembering names, etc. than I was and noticed the other day that I could remember some of my favorite Bible verses easily again, so I know that, with time and faith, it will happen for you, too.

Comment on Scientists Say Chronic Lyme Disease Is Not Real by Tammy Konneker

Tammy Konneker — Tue, 03 Nov 2009 17:10:22 +0000

Lyme….the very unforgiving disease. I was diagnosed in May but think I have probably had it longer than that. I am an RN…just recently was asked to resign my position due to being so ill. Did the doxycycline then IV rocephin for 3 weeks only to find out that they probably missed the spirochette lifecycle by not doing at least 4 weeks of IV rocephin. Am I getting better…YES…but no. Lyme definately does seem to cycle. I may have one good week where I feel pretty functional, other weeks I have so much joint pain, muscle pain, dizziness, nausea, headaches that I appear to be 90 years old at 38. I am very fortunate that I have a wonderful husband and family that have been very supportive. As there where many days I couldn’t even figure out how to turn a radio on…I would just look at the buttons and couldn’t comprehend what to do next. I used to be very involved in Womens Ministry but now have a hard time even finding the books of the bible which before I didn’t even have to think about. I gain so much peace from reading others that struggle in the same way. It helps to know that you’re not alone.

Comment on Scientists Say Chronic Lyme Disease Is Not Real by Greg

Greg — Wed, 27 May 2009 17:38:00 +0000

Jesssica, i understand. Every morning and being awake is horrible in terms of nerve and bone pain. I’m 20.

Comment on Scientists Say Chronic Lyme Disease Is Not Real by admin

admin — Sat, 07 Mar 2009 13:54:16 +0000

Jessica,
I’m sorry to hear you are in so much pain. I had two years of Lyme’s and complications from it and it really was hard. I can’t imagine what you’ve gone through. Currently, I’m doing pretty well and only have residual joint pain when a front goes through.

I did feel incredibly old and exhausted until my doctor diagnosed an underlying severe vitamin D deficiency. If you haven’t been tested for the deficiency, please ask your doctor to test you, too. I was a few weeks away from a wheelchair from all of the pain when my doctor thought to do the test.

It seems like the actual Lyme’s disease is just the tip of the iceburg because it causes so many other things to go wrong. I’ll be posting about it later, but my mom’s little dog has Lyme’s, which caused organ failure.

I hope your doctors can come up with an effective treatment regimen for you. For a look at what some people went through and how the right treatment changed their lives, I recommend the award winning documentary Under Our Skin. It is a wonderful DVD and it is nice to see that someone else “gets it” even if you can’t actually talk with them.

Keep us posted on how you are doing.

Katelyn

Comment on Scientists Say Chronic Lyme Disease Is Not Real by Jessica

Jessica — Fri, 06 Mar 2009 07:32:36 +0000

Lyme Disease has truly ruined my life. Ever since I was diagnosed in the fourth grade (one of the first peds. cases in MD.), I have slowly been deteriorating… I’m turning 23 next week and I feel like I’m 60. Doctors don’t understand, and the other half who ‘kind of’ understand STILL wont help with at least treating all of the pain…. I can’t even get out of bed in the mornings because it’s so painful… my life is just, well, I make the best out of it & I’m thankful to be alive… but I’d be even more grateful for some answers, doctors who believe me, and mostly, just starting on some kind of planned path to fulfill life dreams…

Is anyone else hurting like I am? This is my first time reaching out to a website… I guess I’ve reached the point where enough is enough- I literally can’t bare another night.

Comment on Lyme Related Arthritis by admin

admin — Sun, 05 Oct 2008 00:54:11 +0000

Hi Jim,
It sounds like you are doing everything you can to prevent Lyme in your dog. Do dogs get a reaction to the vaccine that makes them seem like they have the virus?

As far as people…use deet spray on your clothes, wear long sleeves and try to avoid the woods and brush piles. There’s no way you can completely protect yourself against Lyme. Those ticks are just too small and can be carried on too many things, like feral cats and field mice.

Comment on Lyme Related Arthritis by Jim

Jim — Sun, 05 Oct 2008 00:16:28 +0000

Hello everyone, I am a little confused about Lyme Tick Disease as to how easily can I contract the disease from my dog? We had our Chessadore (1/2 chocolate lab & 1/2 chessapeake retriever) puppy vaccinated for Lyme disease and were using frontline too. But after a day on the outer beach (we live on the cape) the “Lakota” starting limping on his front leg, we took that in stride as he was very active on the beach. The next day though he could not even stand up, I had to carry him from the upstairs bedroom to the truck to bring him to the vet. Anyway he had lyme disease and is being treated for it now. He seems to be fine. We live in the woods and the vet says he will most likely get the disease again, the vet bill was over $300. Does any body have any preventive measures I do not know of for preventing this disease to occur again and how to prevent my wife & I from catching it Looking forward to your comments.
Best regards, Jim

Comment on Scientists Say Chronic Lyme Disease Is Not Real by Erin

Erin — Fri, 03 Oct 2008 10:19:02 +0000

Our whole family (me, husband, 2 kids were just diagnosed in the the last few months. I am a nurse and do tons of research and reading–have all you people been tested and seriously clinically assessed for co-infections (ie: HME, bartonella, babesia, etc.)? The lyme treatment it appears does not work if the co-infections are not addressed–it comes back inits cycles (which means you still have it) if the co-infections are not also treated–Dr. Ernie Murakami says some co-infections MUST be addressed first. Get tested by IGENEX, go to drerniemurakami’s website, and read Burrascano’s treatment guidelines for co-infections (and lyme) from the canlyme website (Canadian lyme website). Our daughters each had/have 4 and 3 co-infections and I have at least one. Good luck, keep plugging, and search for doctors who will consult with Dr. Murakami, or who at least read and use Dr. Joseph Burrascano’s guidelines.

Comment on Scientists Say Chronic Lyme Disease Is Not Real by preferNoNameNoCity

preferNoNameNoCity — Thu, 02 Oct 2008 18:51:59 +0000

All I can say is Lyme sucks just as much as the moronic doctors who say 10 days of doxy is enough.

Maybe there’s no cure or treatment or anything. Someone will find it some day some where. Most likely someone who has it or who has a spouse, child, sibling or parent who has it.

Why is it the only doctors who treat this are the one’s who’ve had it?

Comment on Lyme Comes to Ugly Betty by Stacey Kremel

Stacey Kremel — Sat, 27 Sep 2008 01:22:55 +0000

In this episode, Lindsay Lohan’s character claims,”I’m tired all the time”. She says, “I looked it up on the internet and I’m 98 percent certain I have Lyme disease.” She then gives the advice, “Don’t have sex in the woods on Fire Island.”

I’m not sure that’s good press. Maybe if they write her off the show because she has to quit her job because of Lyme Disease, that would be ok.