Comments for Lyme Link http://lymeadvocate.com News and Support for People with Lyme Disease Thu, 29 Jul 2010 20:37:30 +0000 http://wordpress.org/?v=2.2.1 Comment on Do You Have Flare Ups When You Push Yourself? by pamela hood http://lymeadvocate.com/do-you-have-flare-ups-when-you-push-yourself/#comment-6671 pamela hood Fri, 21 May 2010 00:08:50 +0000 http://lymeadvocate.com/do-you-have-flare-ups-when-you-push-yourself/#comment-6671 i had a big flare up that cause to go to the er yesterday i woke up as the day past it hurt to even walk .the doc is doing more test for lupus as well as other things that the lymes left to me. i hate it to feel so bad and i am only in my 40s. i work a full time job and push myself to do most things.cant beleive lymes could do this to a person.god bless i had a big flare up that cause to go to the er yesterday i woke up as the day past it hurt to even walk .the doc is doing more test for lupus as well as other things that the lymes left to me. i hate it to feel so bad and i am only in my 40s. i work a full time job and push myself to do most things.cant beleive lymes could do this to a person.god bless

]]> Comment on Lyme Disease Woes - Relapsed Again by pamela hood http://lymeadvocate.com/lyme-disease-woes-relapsed-again/#comment-6652 pamela hood Mon, 17 May 2010 03:17:11 +0000 http://lymeadvocate.com/lyme-disease-woes-relapsed-again/#comment-6652 a question for all who have had or have lyme disease can u be retested after treatment to even see if antibitics have had any progress.this doc i went to said u shouldnt have any more symtoms after treatment that its most likely fibrom. a question for all who have had or have lyme disease can u be retested after treatment to even see if antibitics have had any progress.this doc i went to said u shouldnt have any more symtoms after treatment that its most likely fibrom.

]]> Comment on No Vitamin D Equals Pain by pamela hood http://lymeadvocate.com/no-vitamin-d-equals-pain/#comment-6462 pamela hood Mon, 26 Apr 2010 01:47:43 +0000 http://lymeadvocate.com/no-vitamin-d-equals-pain/#comment-6462 i am on my first week with out any meds still dont feel any better.i wish i could wake and feel like a new person.i am a active person for the most part i love to plant flowers and fishing,we have a nice boat we go almost every weekend but the pain holds me back from the things i really enjoy.i am trying not to let it get the best of me.you know what i hate the most is when you tell someone you have lyme disease they act as if its a plague and wow how did you get bitten by a tick? sometimes i would like say (i play in the woods all day thats what all of us do when we have nothing better to) But ill be nice "some peolpe who have never been sick dont understand its ashame. i read alot on diiferent medical topics and learned alot its called being aware. i am on my first week with out any meds still dont feel any better.i wish i could wake and feel like a new person.i am a active person for the most part i love to plant flowers and fishing,we have a nice boat we go almost every weekend but the pain holds me back from the things i really enjoy.i am trying not to let it get the best of me.you know what i hate the most is when you tell someone you have lyme disease they act as if its a plague and wow how did you get bitten by a tick? sometimes i would like say (i play in the woods all day thats what all of us do when we have nothing better to) But ill be nice “some peolpe who have never been sick dont understand its ashame. i read alot on diiferent medical topics and learned alot its called being aware.

]]> Comment on No Vitamin D Equals Pain by pamela hood http://lymeadvocate.com/no-vitamin-d-equals-pain/#comment-6456 pamela hood Sun, 25 Apr 2010 15:03:11 +0000 http://lymeadvocate.com/no-vitamin-d-equals-pain/#comment-6456 does lyme disease effect your vitamin D does lyme disease effect your vitamin D

]]> Comment on No Vitamin D Equals Pain by pamela hood http://lymeadvocate.com/no-vitamin-d-equals-pain/#comment-6455 pamela hood Sun, 25 Apr 2010 15:01:10 +0000 http://lymeadvocate.com/no-vitamin-d-equals-pain/#comment-6455 thank you , that makes me feel better,i ask my doc for a retest after all 3 week of meds she said its not needed i want 8 to 9 months without knowing i had lyme just thought it was my back problems until i got to the point that if someone was talking to me i felt like i was going to fall asleep on them somelike mono should i ask for another test or is it the vitamin D thank you , that makes me feel better,i ask my doc for a retest after all 3 week of meds she said its not needed i want 8 to 9 months without knowing i had lyme just thought it was my back problems until i got to the point that if someone was talking to me i felt like i was going to fall asleep on them somelike mono should i ask for another test or is it the vitamin D

]]> Comment on No Vitamin D Equals Pain by admin http://lymeadvocate.com/no-vitamin-d-equals-pain/#comment-6448 admin Sun, 25 Apr 2010 00:55:03 +0000 http://lymeadvocate.com/no-vitamin-d-equals-pain/#comment-6448 Pamela, A lot of doctors think that. I've had Lyme twice and still have problems with flare ups from the first infection. If I stop taking Vitamin D, my levels plunge, despite the fact that I get plenty of sun. It seems to be a permanent "gift" from the Lyme disease. I did go for several months without any big flare ups, but I just came off of several weeks of a lot of pain and swollen joints. I have a large number of friends who say the same thing - they have flare ups every few months and when it rains, they hurt bad. What makes it hard is that I have an equal number of friends who had Lyme, caught it in the first few weeks and recovered completely. So, no, you aren't crazy. Pamela,
A lot of doctors think that. I’ve had Lyme twice and still have problems with flare ups from the first infection. If I stop taking Vitamin D, my levels plunge, despite the fact that I get plenty of sun. It seems to be a permanent “gift” from the Lyme disease.

I did go for several months without any big flare ups, but I just came off of several weeks of a lot of pain and swollen joints.

I have a large number of friends who say the same thing - they have flare ups every few months and when it rains, they hurt bad.

What makes it hard is that I have an equal number of friends who had Lyme, caught it in the first few weeks and recovered completely.

So, no, you aren’t crazy.

]]> Comment on No Vitamin D Equals Pain by pamela hood http://lymeadvocate.com/no-vitamin-d-equals-pain/#comment-6446 pamela hood Sat, 24 Apr 2010 23:06:41 +0000 http://lymeadvocate.com/no-vitamin-d-equals-pain/#comment-6446 hi i have just recently been treated for lyme disease as well as my vitamin being very low in the teens as well every time it rains its very painful for me enough to disable me is this normal even after treatment , my doctor said i should not be having any more symtoms i think shes crazy or is it me? i also have herniated disc with nerve damage in my legs so with that i havent been pain free for 2yrs hi i have just recently been treated for lyme disease as well as my vitamin being very low in the teens as well every time it rains its very painful for me enough to disable me is this normal even after treatment , my doctor said i should not be having any more symtoms i think shes crazy or is it me? i also have herniated disc with nerve damage in my legs so with that i havent been pain free for 2yrs

]]> Comment on Scientists Say Chronic Lyme Disease Is Not Real by admin http://lymeadvocate.com/scientists-say-chronic-lyme-disease-is-not-real/#comment-4412 admin Tue, 03 Nov 2009 18:34:41 +0000 http://lymeadvocate.com/scientists-say-chronic-lyme-disease-is-not-real/#comment-4412 Tammy, I have the same problem with things like the books of the Bible. It is so frustrating. I'm praying God will restore your memory. I'm doing a little better with things like balancing the checkbook, remembering names, etc. than I was and noticed the other day that I could remember some of my favorite Bible verses easily again, so I know that, with time and faith, it will happen for you, too. Tammy,
I have the same problem with things like the books of the Bible. It is so frustrating. I’m praying God will restore your memory. I’m doing a little better with things like balancing the checkbook, remembering names, etc. than I was and noticed the other day that I could remember some of my favorite Bible verses easily again, so I know that, with time and faith, it will happen for you, too.

]]> Comment on Scientists Say Chronic Lyme Disease Is Not Real by Tammy Konneker http://lymeadvocate.com/scientists-say-chronic-lyme-disease-is-not-real/#comment-4411 Tammy Konneker Tue, 03 Nov 2009 17:10:22 +0000 http://lymeadvocate.com/scientists-say-chronic-lyme-disease-is-not-real/#comment-4411 Lyme....the very unforgiving disease. I was diagnosed in May but think I have probably had it longer than that. I am an RN...just recently was asked to resign my position due to being so ill. Did the doxycycline then IV rocephin for 3 weeks only to find out that they probably missed the spirochette lifecycle by not doing at least 4 weeks of IV rocephin. Am I getting better...YES...but no. Lyme definately does seem to cycle. I may have one good week where I feel pretty functional, other weeks I have so much joint pain, muscle pain, dizziness, nausea, headaches that I appear to be 90 years old at 38. I am very fortunate that I have a wonderful husband and family that have been very supportive. As there where many days I couldn't even figure out how to turn a radio on...I would just look at the buttons and couldn't comprehend what to do next. I used to be very involved in Womens Ministry but now have a hard time even finding the books of the bible which before I didn't even have to think about. I gain so much peace from reading others that struggle in the same way. It helps to know that you're not alone. Lyme….the very unforgiving disease. I was diagnosed in May but think I have probably had it longer than that. I am an RN…just recently was asked to resign my position due to being so ill. Did the doxycycline then IV rocephin for 3 weeks only to find out that they probably missed the spirochette lifecycle by not doing at least 4 weeks of IV rocephin. Am I getting better…YES…but no. Lyme definately does seem to cycle. I may have one good week where I feel pretty functional, other weeks I have so much joint pain, muscle pain, dizziness, nausea, headaches that I appear to be 90 years old at 38. I am very fortunate that I have a wonderful husband and family that have been very supportive. As there where many days I couldn’t even figure out how to turn a radio on…I would just look at the buttons and couldn’t comprehend what to do next. I used to be very involved in Womens Ministry but now have a hard time even finding the books of the bible which before I didn’t even have to think about. I gain so much peace from reading others that struggle in the same way. It helps to know that you’re not alone.

]]> Comment on Scientists Say Chronic Lyme Disease Is Not Real by Greg http://lymeadvocate.com/scientists-say-chronic-lyme-disease-is-not-real/#comment-1895 Greg Wed, 27 May 2009 17:38:00 +0000 http://lymeadvocate.com/scientists-say-chronic-lyme-disease-is-not-real/#comment-1895 Jesssica, i understand. Every morning and being awake is horrible in terms of nerve and bone pain. I'm 20. Jesssica, i understand. Every morning and being awake is horrible in terms of nerve and bone pain. I’m 20.

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